hen he was five, he had a tube surgically inserted in a vein in his chest. This tube was connected to a pump, which he carried in a small backpack on his back. Medications were hooked up to this pump and were continuously supplied through this tube to his bloodstream. At times, he also needed supplemented oxygen to support his breathing.

Tyler wasn’t willing to give up one single moment of his childhood to this deadly disease. It was not unusual to find him playing and racing around his backyard