Tyler wasn’t willing to give up one single moment of his childhood to this deadly disease. It was not unusual to find him playing and racing around his backyard, wearing his medicine-laden backpack and dragging his tank of oxygen behind him in his little wagon. All of us who knew Tyler marveled at his pure joy in being alive and the energy it gave him. Tyler’s mom often teased him by telling him that he moved so fast she needed to dress him in red. That way, when she peered through the window to check on him playing in the yard, she could quickly spot him.

This dreaded disease eventually wore down even the likes of a little dynamo like Tyler. He grew quite ill and, unfortunately, so did his HIV-infected mother. When it became apparent that he wasn’t going to survive, Tyler’s mom talked to him about death. She comforted him by telling Tyler that she was dying too, and that she would be with him soon in heaven.